Monthly Archives: August 2013

Navigating Highland Avenue

Posted on August 28, 2013 by dlevine

Jacob Poleyeff has been dropping off and picking up his 11-year-old daughter Jenna at Matheny since May 2012, when she was admitted with a rare seizure disorder known as Lennox-Gastaut Syndrome. “I would estimate that I’ve now taken about 250 … Continue reading →

Posted in Uncategorized | Tagged , , | 1 Comment

Key LND care aspects

Posted on August 26, 2013 by dlevine

By Gary E. Eddey, MD Vice President for Medical Affairs and Chief Medical Officer The most important aspect of the care of Lesch-Nyhan patients from both the practitioner and health system perspectives is collaboration with the parents and/or patient. A … Continue reading →

Posted in Uncategorized | Tagged , | Leave a comment

Early start

Posted on August 23, 2013 by dlevine

Business was brisk at First Chance at Second Chance, the August 14th one-day sneak preview of all merchandise to be featured at the Second Chance Shop, the thrift shop operated by The Friends of Matheny, the auxiliary group that raises funds … Continue reading →

Posted in Uncategorized | Tagged , | Leave a comment

Easing hospital transitions

Posted on August 21, 2013 by dlevine

Because of their medical complexities, children and adults with complex disabilities find the transition to and from acute care hospitals very difficult. Often hospital staff members are not familiar with the patients and not well prepared to address all of their … Continue reading →

Posted in Uncategorized | Tagged , , , | Leave a comment

Finding a home

Posted on August 19, 2013 by dlevine

When he was around 2½ years old, Jacob Rolaf showed signs of bruising and was diagnosed with mild hemophilia. About 4½ years later, he began to experience gastrointestinal bleeding and, as a result, needed to be treated with high doses … Continue reading →

Posted in Uncategorized | Tagged | Leave a comment

Protective devices for LND patients

Posted on August 16, 2013 by dlevine

By Gary E. Eddey, MD Vice President for Medical Affairs and Chief Medical Officer Protective devices are, at times, controversial, but they are essential to use for individuals with Lesch-Nyhan disease. Professionals who are unfamiliar with LND may perceive the … Continue reading →

Posted in Uncategorized | Tagged , | Leave a comment

Musical interaction

Posted on August 14, 2013 by dlevine

Paul West has filled several roles at Matheny and done them all well. As a teaching assistant in the Matheny School, he was named Paraprofessional of the Year. He has also worked as a recreation therapy assistant and a one-on-one aide. … Continue reading →

Posted in Uncategorized | Tagged , | Leave a comment

Arts recognition

Posted on August 12, 2013 by dlevine

For the 18th consecutive year, Matheny’s Arts Access Program has received a grant from the New Jersey State Council on the Arts. The grant, in the amount of $34,267, is for the first year of a three-year grant cycle beginning … Continue reading →

Posted in Uncategorized | Tagged , , | Leave a comment

Matheny’s Lesch-Nyhan expertise

Posted on August 9, 2013 by dlevine

By Gary E. Eddey, MD, Vice President for Medical Affairs and Chief Medical Officer Matheny has been providing residential programs for individuals with Lesch-Nyhan Disease for more than four decades, and currently five young men and one young woman are … Continue reading →

Posted in Uncategorized | Tagged , | Leave a comment

Easy riders

Posted on August 7, 2013 by dlevine

Matheny received three awards at the annual employer recognition breakfast held July 25 by Ridewise, the source for travel alternatives in Somerset County, NJ. The three awards: • New Jersey Smart Workplaces Platinum Award (one of 19 employers honored). • Second place … Continue reading →

Posted in Uncategorized | Tagged , , | Leave a comment